Megan A. Allyse, Ph.D.

Megan A. Allyse Ph.D.

Courtesy Research Associate Professor

Department: Department of Obstetrics and Gynecology
Business Phone: (904) 953-2000
Business Email: allyse.megan@mayo.edu

Publications

2024
From the Front Lines: The Need for Stakeholder Coalitions in Preserving Reproductive Autonomy.
The American journal of bioethics : AJOB.24(2):46-48[DOI] 10.1080/15265161.2023.2296405.[PMID] 38295260.
2024
Healthcare and support experiences of adolescents and young adults diagnosed with 47,XXY, 47,XXX, and 48,XXYY.
Journal of community genetics.15(1):75-83[DOI] 10.1007/s12687-023-00682-8.[PMID] 37864743.
2024
Patient experiences with prenatal cell-free DNA screening in a safety net setting.
Prenatal diagnosis.():-[DOI] 10.1002/pd.6541.[PMID] 38423995.
2024
Psychological reactance, misinformation, and distrust: A mixed methods analysis of COVID-19 vaccine uptake.
Journal of clinical and translational science.8(1):e48-[DOI] 10.1017/cts.2024.15.[PMID] 38510694.
2024
Rapid Expansion of the Healing Emotional Lives of Peers Program During COVID-19: A Second Victim Peer Support Program for Healthcare Professionals.
Journal of patient safety.20(1):28-37[DOI] 10.1097/PTS.0000000000001179.[PMID] 37966348.
2024
The "Strong Black Woman" Paradox: Insights from a Cohort of Black Breast and Ovarian Cancer Patients and Family Members.
Journal of racial and ethnic health disparities.():-[DOI] 10.1007/s40615-023-01905-x.[PMID] 38191790.
2023
"Knowledge is Power": Parent Views on the Benefits of Early Diagnosis and Awareness of Sex Chromosome Multisomy Among Pediatric Professionals.
Journal of developmental and behavioral pediatrics : JDBP.44(2):e119-e125[DOI] 10.1097/DBP.0000000000001153.[PMID] 36454640.
2023
"There's not enough studies": Views of black breast and ovarian cancer patients on research participation.
Cancer medicine.12(7):8767-8776[DOI] 10.1002/cam4.5622.[PMID] 36647342.
2023
Age-Specific Barriers and Facilitators to Research Participation Amongst African Americans in Observational Studies of Memory and Aging.
Journal of racial and ethnic health disparities.():-[DOI] 10.1007/s40615-023-01741-z.[PMID] 37555913.
2023
Cancer Screening Experiences of Black Breast and Ovarian Cancer Patients and Family Members.
Journal of community health.48(5):882-888[DOI] 10.1007/s10900-023-01233-5.[PMID] 37219788.
2023
Community engaged research to measure the impact of COVID-19 on vulnerable community member's well-being and health : A mixed methods approach.
Wiener klinische Wochenschrift.135(9-10):221-227[DOI] 10.1007/s00508-022-02113-z.[PMID] 36469122.
2023
Influence of the COVID-19 pandemic on prenatal and postpartum patient experiences and well-being.
Birth (Berkeley, Calif.).50(4):1034-1044[DOI] 10.1111/birt.12760.[PMID] 37555375.
2023
Never "totally prepared": Support groups on helping families prepare for a child with a genetic condition.
Journal of community genetics.14(3):319-327[DOI] 10.1007/s12687-023-00646-y.[PMID] 37046173.
2023
Nutrition and Emotional Health Education: The Use of Emotional Intelligence and a Plant-Based Diet to Reduce Cardiometabolic Risk.
Global advances in integrative medicine and health.12():27536130231215014-[DOI] 10.1177/27536130231215014.[PMID] 38026440.
2023
Patient perceptions of body mass index restrictions limiting fertility care for women with high body mass index.
Reproductive biomedicine online.47(2):103210-[DOI] 10.1016/j.rbmo.2023.04.001.[PMID] 37246105.
2023
Perceptions and Use of Telehealth Among Diverse Communities: Multisite Community-Engaged Mixed Methods Study.
Journal of medical Internet research.25():e44242-[DOI] 10.2196/44242.[PMID] 36867682.
2023
Translational Justice in Human Gene Editing: Bringing End User Engagement and Policy Together.
The American journal of bioethics : AJOB.23(7):55-58[DOI] 10.1080/15265161.2023.2207513.[PMID] 37339310.
2023
Views of parents of children with Down syndrome on Alzheimer's disease vaccination.
Journal of intellectual disabilities : JOID.():17446295231177787-[DOI] 10.1177/17446295231177787.[PMID] 37226465.
2023
Wither Vulnerability? The Over/Under Protection Dilemma and Research Equity.
The American journal of bioethics : AJOB.23(6):113-116[DOI] 10.1080/15265161.2023.2201201.[PMID] 37220354.
2022
"I had so many life-changing decisions I had to make without support": a qualitative analysis of women's pregnant and postpartum experiences during the COVID-19 pandemic.
BMC pregnancy and childbirth.22(1):537-[DOI] 10.1186/s12884-022-04816-7.[PMID] 35787675.
2022
Ethical considerations of maternal-fetal surgery.
Journal of perinatal medicine.50(5):519-527[DOI] 10.1515/jpm-2021-0476.[PMID] 35092654.
2022
Experiences of individuals receiving a sex chromosome multisomy diagnosis.
Journal of community genetics.13(6):619-628[DOI] 10.1007/s12687-022-00604-0.[PMID] 35986191.
2022
Impact of the COVID-19 Pandemic on Patient Fertility Care.
Journal of patient experience.9():23743735221098255-[DOI] 10.1177/23743735221098255.[PMID] 35548663.
2022
Key Stakeholder Perspectives of Community Engagement Efforts and the Impact of the Covid-19 Pandemic.
Journal of primary care & community health.13():21501319221133076-[DOI] 10.1177/21501319221133076.[PMID] 36331120.
2022
Multidisciplinary Ethics Review for Liminal Cases in Maternal-Fetal Surgery: A Model.
The American journal of bioethics : AJOB.22(3):65-68[DOI] 10.1080/15265161.2022.2027568.[PMID] 35258427.
2022
Perceptions of Ethnoracial Factors in the Management and Treatment of Uterine Fibroids.
Journal of racial and ethnic health disparities.9(4):1184-1191[DOI] 10.1007/s40615-021-01059-8.[PMID] 34013445.
2022
Pilot study of women's perspectives when abnormal uterine bleeding occurs during perimenopause.
Climacteric : the journal of the International Menopause Society.25(5):510-515[DOI] 10.1080/13697137.2022.2073810.[PMID] 35652469.
2022
Pregnant and Postpartum Patients' Views of COVID-19 Vaccination.
Journal of community health.47(5):871-878[DOI] 10.1007/s10900-022-01118-z.[PMID] 35841461.
2022
Prenatal genetics in a post-Roe United States.
Cell reports. Medicine.3(7):100690-[DOI] 10.1016/j.xcrm.2022.100690.[PMID] 35793676.
2022
Understanding the Second Victim Experience Among Multidisciplinary Providers in Obstetrics and Gynecology.
Journal of patient safety.18(2):e463-e469[DOI] 10.1097/PTS.0000000000000850.[PMID] 33871416.
2022
What Really Matters Now in Prenatal Genetics.
The American journal of bioethics : AJOB.22(2):31-33[DOI] 10.1080/15265161.2021.2013990.[PMID] 35089842.
2021
Acknowledging and Addressing Allostatic Load in Pregnancy Care.
Journal of racial and ethnic health disparities.8(1):69-79[DOI] 10.1007/s40615-020-00757-z.[PMID] 32383045.
2021
Bioethics Advocacy in Ethos, Practice and Metrics.
The American journal of bioethics : AJOB.21(2):69-72[DOI] 10.1080/15265161.2020.1861373.[PMID] 33534678.
2021
Building a framework for inclusion in health services research: Development of and pre-implementation faculty and staff attitudes toward the Diversity, Equity, and Inclusion (DEI) plan at Mayo Clinic.
Journal of clinical and translational science.5(1):e88-[DOI] 10.1017/cts.2020.575.[PMID] 34007470.
2021
Creating a pediatric advisory board for engaging youth in pediatric health research: A case study.
Journal of clinical and translational science.5(1):e113-[DOI] 10.1017/cts.2021.399.[PMID] 34221455.
2021
Ethical considerations of maternal-fetal intervention in a twin pregnancy discordant for anomalies.
The journal of maternal-fetal & neonatal medicine : the official journal of the European Association of Perinatal Medicine, the Federation of Asia and Oceania Perinatal Societies, the International Society of Perinatal Obstetricians.34(8):1312-1317[DOI] 10.1080/14767058.2019.1631793.[PMID] 31189438.
2021
Evaluation of a Second Victim Peer Support Program on Perceptions of Second Victim Experiences and Supportive Resources in Pediatric Clinical Specialties Using the Second Victim Experience and Support Tool (SVEST).
Journal of pediatric nursing.61():312-317[DOI] 10.1016/j.pedn.2021.08.023.[PMID] 34500175.
2021
Impact of the COVID-19 Pandemic on Obstetricians/Gynecologists.
Mayo Clinic proceedings. Innovations, quality & outcomes.5(6):1128-1137[DOI] 10.1016/j.mayocpiqo.2021.11.002.[PMID] 34849457.
2021
Patient Recommendations for Shared Decision-Making in Uterine Fibroid Treatment Decisions.
Journal of patient experience.8():23743735211049655-[DOI] 10.1177/23743735211049655.[PMID] 34692992.
2021
Prenatal Genetic Diagnosis of a Sex Chromosome Aneuploidy: Parent Experiences.
Journal of genetic counseling.30(5):1407-1417[DOI] 10.1002/jgc4.1407.[PMID] 33723878.
2021
Second Victim Experience among OBGYN Trainees: What Is Their Desired Form of Support?
Southern medical journal.114(4):218-222[DOI] 10.14423/SMJ.0000000000001237.[PMID] 33787935.
2021
Second victim experiences of nurses in obstetrics and gynaecology: A Second Victim Experience and Support Tool Survey.
Journal of nursing management.29(4):642-652[DOI] 10.1111/jonm.13198.[PMID] 33113207.
2021
The Expert in the Room: Parental Advocacy for Children with Sex Chromosome Aneuploidies.
Journal of developmental and behavioral pediatrics : JDBP.42(3):213-219[DOI] 10.1097/DBP.0000000000000885.[PMID] 33156138.
2020
Decisional regret in women receiving high risk or inconclusive prenatal cell-free DNA screening results.
The journal of maternal-fetal & neonatal medicine : the official journal of the European Association of Perinatal Medicine, the Federation of Asia and Oceania Perinatal Societies, the International Society of Perinatal Obstetricians.33(8):1412-1418[DOI] 10.1080/14767058.2018.1519541.[PMID] 30269633.
2020
Evaluating the Risks and Benefits of Genetic and Pharmacologic Interventions for Down Syndrome: Views of Parents.
American journal on intellectual and developmental disabilities.125(1):1-13[DOI] 10.1352/1944-7558-125.1.1.[PMID] 31877259.
2020
Family experiences and attitudes about receiving the diagnosis of sex chromosome aneuploidy in a child.
American journal of medical genetics. Part C, Seminars in medical genetics.184(2):404-413[DOI] 10.1002/ajmg.c.31781.[PMID] 32181570.
2020
Fertility Preservation for Transgender Individuals: A Review.
Mayo Clinic proceedings.95(4):784-792[DOI] 10.1016/j.mayocp.2019.10.040.[PMID] 32115195.
2020
Provider Knowledge and Support of Uterus Transplantation: Surveying Multidisciplinary Team Members.
Mayo Clinic proceedings. Innovations, quality & outcomes.4(2):150-158[DOI] 10.1016/j.mayocpiqo.2019.11.001.[PMID] 32280925.
2020
Reexamining the Ethics of Human Germline Editing in the Wake of Scandal.
Mayo Clinic proceedings.95(2):330-338[DOI] 10.1016/j.mayocp.2019.11.018.[PMID] 32029087.
2019
'Compassionate transfer': an alternative option for surplus embryo disposition.
Human reproduction (Oxford, England).34(5):791-794[DOI] 10.1093/humrep/dez038.[PMID] 30989209.
2019
Adherence of cell-free DNA noninvasive prenatal screens to ACMG recommendations.
Genetics in medicine : official journal of the American College of Medical Genetics.21(10):2285-2292[DOI] 10.1038/s41436-019-0485-2.[PMID] 30940924.
2019
Attitudes Toward Hypothetical Uses of Gene-Editing Technologies in Parents of People with Autosomal Aneuploidies.
The CRISPR journal.2(5):324-330[DOI] 10.1089/crispr.2019.0021.[PMID] 31599684.
2019
Cell-Free DNA Screening During Pregnancy-Reply.
JAMA.321(3):309-[DOI] 10.1001/jama.2018.18660.[PMID] 30667498.
2019
Delivering the Diagnosis of Sex Chromosome Aneuploidy: Experiences and Preferences of Parents and Individuals.
Clinical pediatrics.58(3):336-342[DOI] 10.1177/0009922818817310.[PMID] 30516062.
2019
Gene modification therapies: views of parents of people with Down syndrome.
Genetics in medicine : official journal of the American College of Medical Genetics.21(2):487-492[DOI] 10.1038/s41436-018-0077-6.[PMID] 29930393.
2019
Response to Johansen Taber et al.
Genetics in medicine : official journal of the American College of Medical Genetics.21(11):2660-2661[DOI] 10.1038/s41436-019-0556-4.[PMID] 31155614.
2019
The clinical application of gene editing: ethical and social issues.
Personalized medicine.16(4):337-350[DOI] 10.2217/pme-2018-0155.[PMID] 31331245.
2019
What do we do now?: Responding to claims of germline gene editing in humans.
Genetics in medicine : official journal of the American College of Medical Genetics.21(10):2181-2183[DOI] 10.1038/s41436-019-0492-3.[PMID] 30914827.
2019
Where Will We Draw the Line? Public Opinions of Human Gene Editing.
Qualitative health research.29(12):1823-1835[DOI] 10.1177/1049732319846867.[PMID] 31057062.
2018
"Whole Again": Why Are Penile Transplants Less Controversial Than Uterine?
The American journal of bioethics : AJOB.18(7):34-35[DOI] 10.1080/15265161.2018.1478044.[PMID] 30040581.
2018
Assessing Duty to Warn in Donated Embryos.
The American journal of bioethics : AJOB.18(7):75-76[DOI] 10.1080/15265161.2018.1478038.[PMID] 30040557.
2018
Conflicts of interest in genetic counseling: persistent underlying questions.
Genetics in medicine : official journal of the American College of Medical Genetics.20(9):1096-1097[DOI] 10.1038/gim.2017.235.[PMID] 29300378.
2018
CRSPR/CAS 9 and Human Therapeutics.
Clinical chemistry.64(8):1266-1267[DOI] 10.1373/clinchem.2018.289447.[PMID] 32100839.
2018
Direct-to-Consumer Testing 2.0: Emerging Models of Direct-to-Consumer Genetic Testing.
Mayo Clinic proceedings.93(1):113-120[DOI] 10.1016/j.mayocp.2017.11.001.[PMID] 29304915.
2018
Implementing Group Prenatal Counseling for Expanded Noninvasive Screening Options.
Journal of genetic counseling.27(4):894-901[DOI] 10.1007/s10897-017-0178-4.[PMID] 29247311.
2018
Key Ethical Issues in Prenatal Genetics: An Overview.
Obstetrics and gynecology clinics of North America.45(1):127-141[DOI] 10.1016/j.ogc.2017.10.006.[PMID] 29428280.
2018
Noninvasive Prenatal Genetic Screening Using Cell-free DNA.
JAMA.320(6):591-592[DOI] 10.1001/jama.2018.9418.[PMID] 30073283.
2018
Weaponizing Hope: Sources of Hope, Unrealistic Optimism, and Denial.
The American journal of bioethics : AJOB.18(9):25-27[DOI] 10.1080/15265161.2018.1498946.[PMID] 30265599.
2018
When to Avoid Giving Advice on the Ethical Conduct of Research.
The American journal of bioethics : AJOB.18(4):94-95[DOI] 10.1080/15265161.2018.1431721.[PMID] 29621454.
2017
"The Top Priority Is a Healthy Baby": Narratives of Health, Disability, and Abortion in Online Pregnancy Forum Discussions in the US and China.
Journal of genetic counseling.26(1):32-39[DOI] 10.1007/s10897-016-9976-3.[PMID] 27277130.
2017
Conflicts of interest in genetic counseling: acknowledging and accepting.
Genetics in medicine : official journal of the American College of Medical Genetics.19(8):864-866[DOI] 10.1038/gim.2016.216.[PMID] 28125084.
2017
Dr. Pangloss's Clinic: Prenatal Whole Genome Sequencing and a Return to Reality.
The American journal of bioethics : AJOB.17(1):21-23[DOI] .[PMID] 27996895.
2017
Expanding Use of cfDNA Screening in Pregnancy: Current and Emerging Ethical, Legal, and Social Issues.
Current genetic medicine reports.5(1):44-53[DOI] 10.1007/s40142-017-0113-x.[PMID] 38089918.
2017
Genetic Fingerprints and National Security.
The American journal of bioethics : AJOB.17(5):1-3[DOI] 10.1080/15265161.2017.1316627.[PMID] 28430071.
2017
Offering Prenatal Screening in the Age of Genomic Medicine: A Practical Guide.
Journal of women's health (2002).26(7):755-761[DOI] 10.1089/jwh.2016.6098.[PMID] 28388340.
2017
The Case of Dr. Oz: Ethics, Evidence, and Does Professional Self-Regulation Work?
AMA journal of ethics.19(2):199-206[DOI] 10.1001/journalofethics.2017.19.2.msoc1-1702.[PMID] 28225701.
2017
Toward an Ethically Sensitive Implementation of Noninvasive Prenatal Screening in the Global Context.
The Hastings Center report.47(2):41-49[DOI] 10.1002/hast.690.[PMID] 28301696.
2017
What do the new American College of Medical Genetics and Genomics (ACMG) guidelines mean for the provision of non-invasive prenatal genetic screening?
Journal of obstetrics and gynaecology : the journal of the Institute of Obstetrics and Gynaecology.37(6):795-798[DOI] 10.1080/01443615.2017.1291597.[PMID] 28366031.
2016
"I think we've got too many tests!": Prenatal providers' reflections on ethical and clinical challenges in the practice integration of cell-free DNA screening.
Ethics, medicine, and public health.2(3):334-342[DOI] 10.1016/j.jemep.2016.07.006.[PMID] 28180146.
2016
"This lifetime commitment": Public conceptions of disability and noninvasive prenatal genetic screening.
American journal of medical genetics. Part A.170A(2):363-374[DOI] 10.1002/ajmg.a.37459.[PMID] 26566970.
2016
Impact of the increased adoption of prenatal cfDNA screening on non-profit patient advocacy organizations in the United States.
Prenatal diagnosis.36(8):714-9[DOI] 10.1002/pd.4849.[PMID] 27244688.
2016
Informed decision-making about prenatal cfDNA screening: An assessment of written materials.
Ethics, medicine, and public health.2(3):362-371[DOI] .[PMID] 27699200.
2016
Spanish- and English-Speaking Pregnant Women's Views on cfDNA and Other Prenatal Screening: Practical and Ethical Reflections.
Journal of genetic counseling.25(5):965-77[DOI] 10.1007/s10897-015-9928-3.[PMID] 26739840.
2015
"Don't Want No Risk and Don't Want No Problems": Public Understandings of the Risks and Benefits of Non-Invasive Prenatal Testing in the United States.
AJOB empirical bioethics.6(1):5-20[DOI] .[PMID] 25932463.
2015
Cherchez la Femme: Reproductive CRISPR and Women's Choices.
The American journal of bioethics : AJOB.15(12):47-9[DOI] 10.1080/15265161.2015.1103808.[PMID] 26632363.
2015
Findings of nonparentage: a case for autonomy.
Pediatrics.135(1):e284-5[DOI] 10.1542/peds.2014-2887B.[PMID] 25554818.
2015
Non-invasive prenatal testing: a review of international implementation and challenges.
International journal of women's health.7():113-26[DOI] 10.2147/IJWH.S67124.[PMID] 25653560.
2015
Noninvasive Prenatal Genetic Testing: Current and Emerging Ethical, Legal, and Social Issues.
Annual review of genomics and human genetics.16():369-98[DOI] 10.1146/annurev-genom-090314-050000.[PMID] 26322648.
2015
Old Questions, New Paradigms: Ethical, Legal, and Social Complications of Noninvasive Prenatal Testing.
AJOB empirical bioethics.6(1):1-4[DOI] 10.1080/23294515.2014.993440.[PMID] 26185771.
2015
Prudentia Populo: Involving the Community in Biobank Governance.
The American journal of bioethics : AJOB.15(9):1-3[DOI] 10.1080/15265161.2015.1062175.[PMID] 26305740.
2015
Too much, too soon?: Commercial provision of noninvasive prenatal screening for subchromosomal abnormalities and beyond.
Genetics in medicine : official journal of the American College of Medical Genetics.17(12):958-61[DOI] 10.1038/gim.2015.23.[PMID] 25790161.
2014
Attitudes towards non-invasive prenatal testing for aneuploidy among US adults of reproductive age.
Journal of perinatology : official journal of the California Perinatal Association.34(6):429-34[DOI] 10.1038/jp.2014.30.[PMID] 24603453.
2014
Demographic and experiential correlates of public attitudes towards cell-free fetal DNA screening.
Journal of genetic counseling.23(6):957-67[DOI] 10.1007/s10897-014-9704-9.[PMID] 24715419.
2014
Noninvasive prenatal testing goes global.
Science translational medicine.6(231):231fs15-[DOI] 10.1126/scitranslmed.3008704.[PMID] 24718856.
2013
23 and Me, We, and You: direct-to-consumer genetics, intellectual property, and informed consent.
Trends in biotechnology.31(2):68-9[DOI] 10.1016/j.tibtech.2012.11.007.[PMID] 23237855.
2013
Best ethical practices for clinicians and laboratories in the provision of noninvasive prenatal testing.
Prenatal diagnosis.33(7):656-61[DOI] 10.1002/pd.4144.[PMID] 23613322.
2013
Ethical, Legal and Social Issues Surrounding Research on Genetic Contributions to Anti-Social Behavior.
Aggression and violent behavior.18(6):-[DOI] 10.1016/j.avb.2013.07.011.[PMID] 24319343.
2013
Not-so-incidental findings: the ACMG recommendations on the reporting of incidental findings in clinical whole genome and whole exome sequencing.
Trends in biotechnology.31(8):439-41[DOI] 10.1016/j.tibtech.2013.04.006.[PMID] 23664778.
2013
Translating cell-free fetal DNA technology: structural lessons from non-invasive RhD blood typing.
Trends in biotechnology.31(1):7-9[DOI] 10.1016/j.tibtech.2012.09.001.[PMID] 23040170.
2012
Cell-free fetal DNA testing for fetal aneuploidy and beyond: clinical integration challenges in the US context.
Human reproduction (Oxford, England).27(11):3123-31[DOI] 10.1093/humrep/des286.[PMID] 22863603.
2012
Customers or research participants? Guidance for research practices in commercialization of personal genomics.
Genetics in medicine : official journal of the American College of Medical Genetics.14(10):833-5[DOI] 10.1038/gim.2012.64.[PMID] 22699154.
2012
In the public interest?
Science translational medicine.4(144):144fs23-[DOI] 10.1126/scitranslmed.3003612.[PMID] 22837535.
2012
Informational risk, institutional review, and autonomy in the proposed changes to the common rule.
IRB.34(3):17-9[DOI] .[PMID] 22830179.
2012
Integrating stakeholder perspectives into the translation of cell-free fetal DNA testing for aneuploidy.
Genome medicine.4(6):49-[DOI] 10.1186/gm348.[PMID] 22720727.
2011
Cell-free fetal DNA testing: a pilot study of obstetric healthcare provider attitudes toward clinical implementation.
Prenatal diagnosis.31(11):1070-6[DOI] 10.1002/pd.2835.[PMID] 21793012.
2011
Ethics watch: the G.I. genome: ethical implications of genome sequencing in the military.
Nature reviews. Genetics.12(9):589-[DOI] 10.1038/nrg3063.[PMID] 21808260.

Office Information

Academic Office
Mayo Clinic Florida
4500 San Pablo Rd S
Jacksonville, FL 32224
(507) 284-0481
allyse.megan@mayo.edu
Administrative Assistant
Ruby Ethridge
(904) 953-2000
ethridge.ruby@mayo.ufl.edu

Education

Ph.D.
2010 · University of Nottingham, Nottingham, England